Some days, I think the only thing worse than being in a coma is what happens when you wake up. Two years ago, my life was pretty set up. I was a therapist for severely schizophrenic adults, had lots of friends, took '60s dance classes, and often cleaned my house in a cocktail dress. Then, out of nowhere, I came down with a mysterious illness.
It seemed like pneumonia with an attitude; after weeks with no improvement, I was admitted to the hospital. That night, I was in such bad shape that the doctors had to induce a coma to try and keep me alive. My boyfriend had to call my parents to have them fly to the hospital.
For 10 days my family and friends sat at my bedside in the ICU, conferring with doctors and feeling terrified. They discovered that I have a rare disease that is basically arthritis of the organs, and when they started the appropriate medication, I stabilized within days and woke up. Which is when things got weird.
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When I Woke Up ...
My confusion upon waking up was all-encompassing. I had no idea what had happened, and I couldn't ask, since I was hooked to tons of wires and tubes.
You know in movies where someone wakes up from a coma and starts singing and dancing? Total BS. Lying down for just 10 days makes your muscles weaker than a baby's, and makes your body swell up to epic, cartoonish proportions. I was baffled and couldn't make my body work, and frustrated that everyone else understood what was going on but me. I remained hospitalized for weeks while I recovered.
I'm a Coma Patient, Not an Oracle
I quickly learned how irritating it is that the sick and the disabled are often treated as if their "afflictions" make them purer or different than everyone else. Suddenly, my being ill had trumped my being me.
People I barely knew crowded into my hospital room to wish me well, and when I spoke, they leaned in, wondering what kind of wisdom or clarity I'd gleaned from my near-death experience. Instead, I asked them about celebrity gossip I'd missed.
"You are truly blessed," I was told, more than once and more than a little forcefully. I did realize how blessed I was, and it made me feel stronger and weaker and grateful and scared all at the same time. But I didn't see how that related to me doling out platitudes to old co-workers and acquaintances.
It seemed that people were desperate to hear how trauma lit an introspective fire under my ass.
Life After Near-Death
After I was released from the hospital, my boyfriend offered to take me anywhere I wanted to go. I thought of all the things available to me and realized that what I wanted most was to watch "Purple Rain" and eat curry fries from the Irish pub down the street.
I wanted to laugh at people on the subway with my best friend, and I wanted to have one of those lazy days where you only get dressed to greet the Thai food delivery guy. Normal, everyday things.
Being in a coma made me realize that yeah, life should be lived to the fullest -- but I think we get stuck on what "the fullest" actually means. It isn't something you see in Lifetime movies, where somebody gets sick and spends the rest of her time "touching the lives" of every person she meets. It means seeking fulfillment in all its many forms.
All of them -- even fries, Prince movies, celebrity gossip -- are more essential to your being than anything you'd list on a résumé.
Emily Gordon is a blogger and journalist who lives in New York. As a person who has had a textbook near-death experience, she would advise you to spend less time trying to be "a better person" and more time enjoying making fun of people with crazy drawn-on eyebrows.
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Sunday 06 September
By Judy
When we go through something difficult, we can reach back and pull someone else through with words of encouragement and understanding. Doing something generous usually sublimates the experience a little and makes us feel a little better. Nothing would be as good as not having had to go through it but since we did, reaching out can be good for the soul. It makes me feel more at one with my fellow suffering human beings. The experience does not necessarily make you wiser but maybe a little more of a human being....or maybe if you were really bitchy to begin with, you are likely to stay that way.
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Sunday 06 September
By Cathy
LOL Judy!
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Sunday 06 September
By Cathy Kodosky
I can totally relate to Emily's comments. I had a near death experience almost 7 years ago when I contracted a staph infection that threw my body into a sepsis. I was in ICU for five weeks. I had surgery to remove a bag of infection from the front on my spinal column, which left me a quadraplegic for a while. The pain I felt from lying in bed for so long without moving I could only describe as feeling as tho my body was made of papier mache and that when I moved it would crack. I was in a theraputic hospital for two and a half months and had to relearn to use my arms and legs again. All along I had people tell me that I was a miracle. I believe in miracles, but I was not one of them. I worked hard. So did my doctors and therapists. I was asked if I appreciated life more now. Why? I appreciate it just as much as I did before ... especially the little things I so enjoyed before I was sick. I am grateful and thankful for all the support, good wishes and medical knowledge extended to me by my caretakers. Without them I would not have made it. But, you either do it or it does you.
I certainly enjoyed reading and relating to Emily's statement.
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Sunday 06 September
By Ann
A member of my family was in a coma with severe brain injury for almost 6 weeks. However, since they were "asleep" while their body healed, they don't realize how close to death they were. When they woke up and could function (about 50% for a while), had to learn to walk, eat, dress, everyone told them how it was a miracle, as they were expected to be bedridden the rest of their lives. Unfortunately, they started back to the bad habits that they had been dealing with beforehand, as they remember no pain. All they remember is sleeping and waking up, like it was the next day. There are residues of the trauma, but they don't really understand. So it's like one day at a time, but they are trying to change for the better, for themself and family.
So enlightenment doesn't always come after a coma, nor thankfulness to be alive. But the family is eternally grateful to God and the doctors for all they've done. And we can empathize with anyone going through this.
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Sunday 06 September
By - David
I think that your comments indicate that you are a very shallow and ungrateful person. I, too, was in a coma for 5 days. It was a result of an attempted suicide where I took approximately 75 Soma (a muscle relaxer) in a selfish attempt to achieve a permanent solution to what I now can see was a temporary situation. I blacked out in the kitchen and sat in a corner with my left leg curled up under me for about 6-8 hours until my wife found me the next morning. At the hospital, the doctors told her that she should get my affairs in order because after taking that many Soma, I was certain to die. If perchance I did survive, there would be "significant" brain damage. As a result of sitting on my leg for so long, I had developed Compartment Syndrome and the doctor's performed a fasciotomy to accomodate the swelling (which was followed by approximately 15 debredmen surgeries to remove necrotic tissue) . Why they did this when I was expected to die, I don't know, but since I miraculously survived with apparently very little or no brain damage, I am grateful. I can remember vividly some of my experience while in the coma. I don't know how long this experience lasted, because while I was going through it, time ceased to have meaning. I was completely surrounded by a light. There was no "bright light" for me to go into, just a light which I would equate to a 60-watt light bulb that was of the purest white I have ever seen and completely surrounded me. I was suspended in the midst of the light by some force that held me, although I had no sensation of lying on anything or being held in place by any part of me body. I just floated in space, or perhaps I moved very quickly through the light without the sensation of movement, I don't know. It was an experience unlike any I have ever felt. At some point, I became surrounded by an entity that seemed to be comprised of many, many individual souls, all functioning as one single being. For purposes that make it easier for me to relate what happened while in the presence of this entity, I would like to call it (or rather them) Angels. What these Angels did to me is hard to explain, for I have never experienced anything like it. For lack of a better description, I was massaged and warmed and cleansed to the very heart of my soul. I existed in this environment without the shell of my terrestrial body and my soul seemed to have form, but at the same time was limitless. I don't think I actually melded with these Angels, but still I felt a part of them, and I felt them within me at the same instant. When I revived from the coma, I felt a joy and happiness like none I have ever felt. I have suffered from severe, chronic depressioon for almost the entire 50-some years I have been alive and I suffer from chronic, severe pain in several parts of my body that has required a number of surgeries and has left me half blind and crippled. That depression and pain is now diminshed to the point where it no longer constantly controls me. I have retained at least some of the peace, joy and happiness that my Angels infused in me. I thank God that I survived this attempt to take my own life and believe that He saved me by using His Angels. I also believe that He saved me because He has plans for me and that I have a purpose and a destiny to fulfill for Him that I have not yet accomplished nor fully understand. I am a spiritual man with a strong faith in God. I can't say that I believe in Jesus Christ's claim to be the Son of God as anything extra special, because I believe that we are all the sons and daughters of God. I have to say that I think the story of Jesus is just that, a story. Although I do believe that he was a great man, I think that the claims attributed to him are legend and myth that was passed down through generations of men, modified and altered however slightly with each telling, until a version of his story was written in The Bible, and that version is full of errors and contradictions. God, however, is an omnipotent being that we do not fully understand and it was Him that saved my life and returned me to my wife, family and friends with a purpose to fulfill that I do not currently conceive nor understand. Whatever it turns out to be, I learned that life is a blessing and not something to trifle with. I am thankful now for every day that I am here and I now try to take the time to meditate and open myself so that I may one day realize my destiny. To survive such an experience only to make fun of people with physical characteristics that are not "normal" (whatever THAT is), or to find home delivery of Thai food to be life fulfilling is, I think, a shallow attitude. I do agree that life should be lived to the fullest, I just don't understand how to apply "the fullest" to an individual, for I think it is a different experience for each person. Whatever it is, I just want to say one more time that I do thank God for reviving me and allowing His Angels to heal my soul and restore my spirit to the point that it is. He is a malevolent being. Although He may not always be understood to be benevolent in His acts, I now believe they are all with purpose and support a grander scheme that we may not comprehend at any given moment in time.
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Monday 07 September
By DGreen4655
David, I find your letter quite remarkable. I do have a question. Near the end of your letter, you wrote "He is a malevolent being." I know that malevolent means evil. Was that your intent? Your next sentence declares God to be benevolent, which is opposite of malevolent. Please clarify your meaning. Thanks and may God bless you for all the days of your life.
Sunday 06 September
By Tim
After being in a coma for 21 days and going through the step down unit and finally physical therapy, it is a long road back. I went to work and woke up a month later with my wife asking me if I knew who she was. Please don't doubt for a minute that we can hear even if we can't respond that being talked about in the third person in front of us is painful and freighting. Dr's assure the families even if he wakes up he may be brain damaged, we will send him to a long term facility, scary when you hear and can't respond. Talk to the person in the coma and by all means touch, my wife would rub my forehead and instantly calm me down in the coma. If you are interested I wrote about in my blog http://morningcoffee-tlee.blogspot.com go to archives last October 11th 2008. I was lucky to come back and get a second chance. After all of that I had a reaction to the drugs they were giving me and lost all of my skin like a second and third degree burn (TEN). To the author of the article if you didn't gain any insight into your life and world then you need to take a minute, sit down and find where your going wrong you are blessed.
Your in my thoughts and prayers
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Sunday 06 September
By Sandy
I was in 7th grade when I went into a coma and it was not drug induced and I knew what people were saying, I knew what was going on around me but for the life of me I could not speak or get my eyes open. I felt blessed when I woke up because for 2 weeks I listened to my Dad pray that he would do whatever God wanted him to do if I would just wake up. I use to love to play Rummy with my dad or really any card game. When I came out of myy coma I did jump up and ask if he was ready tom play cards. I think recovery depends on the lenght of the coma. I was fortunate that Childrens Hospital found a cure and I came out of the coma in about 2 weeks. The 1st Hospital told my family it was up to the physician in the sky but my parents felt led to try a second opinion. I just try to enjoy life family, friends and definitely grandkids...I Thank God for his blessings.
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Sunday 06 September
By diana dunne-brown
Everyone has the right to feel how they feel about what traumatizing experiences they survive. It's not about God, it's not about being a better person - it's strictly about surviving and putting the pieces together afterwards.
I was on a respirator for a week after going into respiratory failure after a very long spinal surgery. I was not tranquilized or put into a coma medically, but remember a great deal about the whole ugly experience. After 14 days in the hospital I returned home feeling like a broken person. 7 years later and I still suffer from post traumatic stress syndrome. Any one who would try to tell me I need to be more grateful or "find God" after this trauma can go bite it. I'm glad I didn't leave my husband, my children without a mother and I'm so happy to have seen my grandchildren being born and growing these last 7 years, but I still have nightmares, panic attacks and despise what the experience did to me. Unless you've experienced the feeling of a machine pumping air into your lungs and needles and tubes in every available vein and orafice of your body you cannot know the horrors of what that is like. Leave people in peace with their experiences and respect their outlooks on them. These memories and experiences belong to them, not you.
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Sunday 06 September
By J
You know, I am a breast cancer survivor and I have to say I completely agree with the author of this short story. No, I never went into a coma. I didn't even have to do chemo or radiation as I caught my cancer early. Everyone I know makes such a big deal out of my cancer - so much more so than me. What I find most uncomfortable are the comments people make about how "strong" I was through my cancer (I am actually still undergoing reconstruction). There was nothing "strong" about what I did. I had surgery. Now I have had my breasts reconstructed. That's it. That's all. I wasn't even sick long enough to realize I was sick. I can completely connect with the author's reference to the irritating quality that others take on of the sick being somehow more enlightened after being sick. It isn't enlightenment. I am no more sure of what happens after death or what the meaning of life is now than I was before I got sick. I am no braver now than I was before I got sick. My approach to the cancer was the same approach I use with any problem: Let's identify what the problem is and find a solution. Let's not take forever finding a solution, either. Find two maybe three options, pick one and go for it. That's it. And just because I had cancer doesn't mean I'm gonna be walking in every breast cancer research fundraising event now, either. The cancer was not my life - it was part of my life. I think what the author is trying to express is that just because someone was really sick, it doesn't change who that person is at the very core. For the rest of you who expect those of us who HAVE been really sick and know what it's like to somehow be more grateful or more indebted to society in general because we survived I say, screw you. Get sick yourself and see how YOU feel about it. If you are an attention seeker then you will be one of those people who can never let it go and move on. For the rest of us....ttttthhhhhhpppptttt!
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Thursday 10 September
By Carlos
rom: Emily V. Gordon (emilyroxx97@yahoo.com)
Subject: Article Crap HELP!!!
On Thu, Sep 6, 2009 at 10:33 AM, wrote:
>
>
> Los! Have you read the comment section on my latest article? Can you do >me a favor and copy and paste this under your name? PLLLEEEAASE?
>
>Hey guys! I dont know why it should matter what religion Emily is, or whether >she actually believes in a higher power or not. I think, what shes trying to say >is that we should all search our souls and find the common unconditional >love in our lives. We're all human and have feelings. Can't we all just get >along?
>
>Youre a pal! Are you going to Shelas party on Weds? Let a bitch know!
>
>Em Em
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Thursday 10 September
By willowreed
why are all the bible thumpers so long-winded?
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Saturday 12 September
By Tamme
My son almost died last week - he is 20 and healthy - he had a seizure and aspirated - he was brought in the ER in a coma and then they put him in a induced coma - he does not remember anything - But WE DO !!
He has the same attitude now as he did before this happened - and you are right about others - we saw the tubes, needles, oxygen - everything they were doing to save his LIFE ........ it may not of changed him - but it changed US, - thankfully he is going to make a 100% recovery and I am forever changed and grateful! and so are many others in his life.
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Sunday 13 September
By Steve
Emily, thank you for giving the world your story.
I was in a coma for ~2 weeks following a construction fall in NYC. When I came out of it, my first reaction was being very cold and experiencing pain. No visions, no clairvoyant views. I had sustained a traumatic brain injury, where I needed to relearn a new life. This happened on a Friday in January 1990, two days before my 21st birthday. I can only state in retrospect that it took me about 6 years to fully 'get back' to feeling comfortable with myself.
When it had occurred, I had many physical injuries (many broken bones, nerve damage, including a temporary paralysis on my left side of my body). However, the major issue was trying to piece together all the communicative ties I had with everyone I had known with prior, along with the memories I shared with each individual. That was foolish on my part, but I was determined to become that person I was before the injury. In the fall of 1990, my parents lovingly felt it best to return me to college to be with my peers again. Many students asked me if I had seen anything or anyone while comatose. People were desperate to hear how trauma was going to change my world, as well. My closest friends knew it was going to be a day-to-day struggle for me trying to regain a new life.
I put on this facade when I returned. I went from becoming a A-student without barely needing to study into a D-student, trying to be someone I really wasn't any longer. Along with returning in what would be my 5th year, I went to rehabilitation as well, and I made a conscious effort to stop being what I thought others wanted to see. I struggled, but stayed determined and graduated in the spring of 1992.
You are correct, Emily, it is the small memories that give life some type of meaning. However, I would just want everyone to be themselves and not put on costumes to please others. This could be said without ever being in a coma, yet having one makes it all the more difficult.
I did have this horrible regret to a past g/f of five years I had, and why I had split up with her a year prior to my injury. I guess in that respect, I had seen my faults clearer.
-Steve C
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Sunday 13 September
By Amber
I was in a coma for 3 days 10 years ago. I was in Florida on a vacation and had come home sick as were 2 other people in my family. Thinking nothing more then a cold we dealt with it like normal. Then one day I went to the bathroom thinking I was about to be sick and woke up in the hospital days later. It turns out I had 3 seizures and was pregnant without knowing. My tongue was swollen the size of my mouth so I couldn't speak. I agree the worst part is all the people standing over you as you sit and wonder "what is going on and where am I?" It is all too weird and confusing. I would like to say this though both of us are great my son is 10 now and a very smart normal little boy. I also want to say that I too have heard all the sympathy and care in peoples voices as they say how awful it was and how they will pray for me but, after some time it does get to a point that you just want to explain things. It isn't that you want sympathy or for anyone to feel sorry for you but, that you just want to tell people your story.
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Sunday 13 September
By Cheryl
My mother has been in a coma since March 1st 2009. We are with her everyday and I hope she doesn't feel like we are treating her any differently just because she is sick. We still speak to her as if she can hear us and I know (God willing) she will come back to us and be her same joyful self she was b4 this happened.
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Thursday 28 January
By NotHere
well what to say? it seems that the majority of these posts are people who havent had or remembered their NDE. For those that do they know that it was a terrifying exspirence and yes you damn religious nut cases you are alone their is no god higher being w/e you call it or see it as. You project and control what your afterlife is based on the life you live here. I grew up in a very strict Christian home like most religion was forced on me weather i liked it or not. So are you making the connection here? We created that next life everyones after is going to be different., well for me iam pretty much lost and dont belong here i cant even kill myself without waking up here, this is my personal HELL.
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Thursday 01 April
By rhonda
I am the newest here--thank God! I was in a coma this past June. I would love to have "coma" friends. I to understand the pain of rehab...standing/walking/sitting/... . Then you get home and they love you--but they wont really hear you !
Thursday 01 April
By rhonda
It is going to be a year soon for me and my "coma" anniversary. It is nice --but not nice-- to hear from others who "get it". It still hurts and I still have ?'s but no one wants to remember those days. I do understand their pain but I still have alot I need to know.
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Sunday 18 April
By Jill Hilliard
I just wanted to thank you for the post .....one of the first person that stated it all right....after a near fatal crash I was hit by a drunk driver I was flown to a nearby hospital and put in a drug induced coma for 11 days and I swear if I hear from one more person that there was a reason for all this that god spared me for some higher reason ...I think I was going to beat someone .....your life isnt any of the huge big moments its all those little moments that make us happy .....I am glad that you made it and purple rain with be enjoyed many more time by someone that truely loves it ....enjoy the fries girl!!!
Jill from Tennessee
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